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The examples of best practices were collected in 2015 through a questionnaire asking about the daily life of Gaucher patients. 131 patients from 22 countries have contributed to the brochure, which we encourage you to use, enjoy and learn from. Share it with your family, your doctor at the hospital or in other situations, where suggestions could be helpful.


The brochure was published by the IGA in 2018 and is available here