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In 2020, we received direct requests for treatment from 11 countries such as Afghanistan, Honduras, India, Jordan, Kenya, Morocco, Mozambique, Pakistan, Senegal, South Africa and Sudan. By working closely with Sanofi Genzyme, Pfizer and Takeda we helped give a future to 31 Gaucher patients as they received donated ERT.

 

What is charitable access?

These are programmes managed by the manufacturers of medicines for Gaucher disease where they donate medicine ‘free of charge’ to patients where the patient is not able to access the medicines through reimbursements. Each company charitable access programme operates in a different way and will have a set of eligibility criteria that will need to be met. 

 

What can the IGA do to help?

The IGA operates a database where we record all requests that are received, this information is then shared, with permission by the IGA with anyone we believe may be able to help the patient. We will advocate on behalf of the patient. The IGA has built up a strong relationship based on respect and trust will all of the companies and works very hard to support patients in a transparent manner.   

 

We currently work with Pfizer, Sanofi Genzyme and Takeda who have all donated medicine through their charitable access programmes to Gaucher patients globally. 

 

What to do if you are seeking treatment?

Please download this form and return it to us.  By completing this form, it gives the IGA permission to share the patient’s details with all of the pharmaceutical companies in the hope that they may be able to help. 

For more information on the IGA’s humanitarian aid efforts please contact Tanya Collin-Histed
 

IGA builds moral of patient’s family.  IGA gives hope to the patient and the family. For my case before meeting IGA I was worried and helpless because there is no medicine in my country and at the same time I cannot afford to buy from abroad. IGA is an incredible organisation that serves humanity equally without looking at race, religion and colour. IGA is an international organisation with no boundaries.
Hassan Suraw (Father from Kenya)

My nephew has been receiving free therapy for two years now to fight against Gaucher disease. All our family is deeply grateful to the IGA for the support it has received in recent years that allows AbdeI-ilah to survive (the only one alive of three brothers, all sick). We thank very well all the people who finance this association because their good heart allows many children to survive around the world.
Youssef Mounib (Uncle from Morocco)

I would like to say thank you to IGA as they have saved the life of my son by providing the drug. Since IGA started providing ERT my son started getting better and better. Now he has started school and he is performing well; he is able to play with other kids; he does some domestic works; he is healthy; as family we are free to go to our work, we no longer stay with him the whole day.
John Nsabumukiza (Father from Rwanda)