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News & Veranstaltungen

  • ORDER YOUR #IGD2019 TATTOOS - MEMBERS ONLY

    5 Juni 2019

     

    As part of IGD2019 "Rare Stars: Bringing hope, improving lives" we are looking into the possibility of producing the IGD2019 logo as temporary tattoos* which we will send to each of our member patient groups to share with …

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  • NOMINATE YOUR RARE STAR FOR #IGD2019

    4 Juni 2019

     

    Following the announcement of our 2019 campaign for IGD "Rare Stars: Bringing hope, improving lives" we would like to ask you to nominate your own Rare Star - this should be someone who has made a difference in your life as a …

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  • International Gaucher Day 2019 #IGD2019

    31 Mai 2019

    Following the success of the 2018 'Rare Stars: Giving hope, improving lives' campaign, we are continuing the theme but with a more personal focus in those unseen rare stars who have shown support to Gaucher patients during their …

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  • May newsletter

    28 Mai 2019

    Our May newsletter is available to download here

  • April newsletter

    25 April 2019

    Our latest newsletter is now available - read about the IGA's plans to expand its global reach and its partnership with AVROBIO to explore gene therapy as a potential treatment for Gaucher patients here 

  • AVROBIO explore gene therapy as a potential treatment for Gaucher disease

    10 April 2019

    The IGA are excited to be working in partnership with Avrobio to explore gene therapy as a potential treatment for Gaucher patients.  

    AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing …

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  • March newsletter

    26 März 2019

    Read our latest newsletter here

  • Election of new Chair and Vice-Chair

    6 März 2019

    Following Pascal Niemeyer’s resignation from the IGA board of directors, we are pleased to announce that Vesna Aleksovska has been elected Chair and will be supported by Biljana Jovanović, who has been elected Vice-Chair.  Both bring a …

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  • February newsletter

    28 Februar 2019

    Read our latest newsletter here

  • Pascal Niemeyer resigns as IGA Chairman and Director

    13 Februar 2019

    Pascal Niemeyer, Chairman of the IGA since 2016, has decided for personal reasons to resign both, as chairman and as director of the IGA.

    The IGA regrets but will respect his decision.

    We are very thankful for Pascal´s engagement for the …

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