LINK ZU EINEM UNSERER 41 MITGLIEDSLÄNDER FÜR UNTERSTÜTZUNG, BERATUNG UND NACHRICHTEN

Karte ansehen
schließen
  • Finland
  • Norway
  • Sweden
  • Estonia
  • Russian Federation
  • Latvia
  • Denmark
  • Lithuania
  • United Kingdom
  • Netherlands
  • Ireland
  • Poland
  • Germany
  • Belgium
  • Czech Republic
  • Ukraine
  • Slovakia
  • Luxembourg
  • Moldova, Republic of
  • Austria
  • France
  • Switzerland
  • Romania
  • Slovenia
  • Croatia
  • Serbia
  • Bosnia & Herzegovina
  • Bulgaria
  • Italy
  • Macedonia, the Former Yugoslav Republic of
  • Spain
  • Greece
  • Israel

Veranstaltungen

  • Extraordinary General Meeting

    9 September 2020

    On 30th September 2020 at 5.30 pm UK time the IGA will hold a short special general meeting (via zoom) to present to our members a number of changes to our constitution, which if approved will allow us to apply to become a registered charity in …

    read more »

  • AAV Gene Therapy for neuronopathic Gaucher disease and Parkinson's disease with a GBA mutation

    5 August 2020

    Taking place on Monday 5th Ocober from 3-4:30pm (BST), this is the second in a series of educational webinars for our members on the latest developments in gene therapy will focus on AAV-based gene therapy and Prevail Therapeutic's approach …

    read more »

  • IGD2020: Home Therapy webinar

    5 August 2020

    In view of the challenges many Gaucher patients have faced during the coronavirus pandemic, the focus of this year's IGD campaign is home therapy.

    The second of our educational webinars on home therapy, this one will take place on 1 …

    read more »

  • Ex vivo Gene Therapy for GD1

    5 August 2020

    The first of a series of educational webinars on the latest developments in gene therapy for Gaucher treatment, focusing on AVROBIO's lentiviral gene therapy, an ex vivo gene therapy approach for Type 1 Gaucher disease, will take place on …

    read more »

  • EWGGD GD1 Guidelines

    5 August 2020

    IGA in collaboration with EWGGD to form a working group to develop International clinical management guidelines for type I Gaucher disease

    On Monday 14th September at 3pm (GMT) the EWGGD/IGA will host a kick-off event to develop International …

    read more »

  • Gaucher and Parkinson's disease: the early signs and risks to carriers

    31 Juli 2020

    We will have three panelists: prof Ari Zimran, prof Per Svenningsson and Dr Marco Baptista.

    Researchers have linked Gaucher disease to a slightly increased risk of having Parkinson's disease later in life. This is also true for carriers, …

    read more »

  • International Gaucher Day 2020

    14 Juli 2020

    Taking into consideration the challenges currently being faced by our members due to the current Covid-19 pandemic we have decided to focus this years' campaign on home therapy.  Earlier this year we held a webinar and have been working …

    read more »

  • COVID19 - home treatment webinar

    28 April 2020

    One of the challenges that the COVID19 situation has brought to Gaucher patients is receiving ERT infusions and at the recent EWGGD webinar recommendations were made to provide home treatment wherever possible.

    A Zoom meeting has been set up for …

    read more »

  • Biennial Members Meeting

    16 April 2020

    Notice is hereby given that the Biennial General Meeting of the International Gaucher Alliance will be held online via Zoom on Saturday 23 May 2020 at 7pm (UK time).

    Details of the meeting including resolutions and business to transact have been …

    read more »

  • 2020 Biennial Members Meeting

    4 Februar 2020

    The IGA’s biennial members meeting and the 14th EWGGD congress will take place in Leiden, Netherlands from 23rd to 27th May 2020 and the IGA will be inviting one representative from each of its member associations to attend.  

    (The …

    read more »