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- ÜBER DIE EGA
- NEWS & VERANSTALTUNGEN
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Vesna Aleksovska writes:
"As chair of the IGA, I am delighted to announce that Aviva Rosenberg the IGA representative for the National Gaucher Foundation has agreed to join the IGA Board as our new co-opted member. Aviva is a health care …
We have published our latest newsletter, you can read it here
We have always pledged to help any Gaucher patient that asks us for help wherever they live in the world, therefore advocating for charitable treatment has always been and will be our priority.
We are so pleased to be able to share with you (with …
We received a lovely letter from Hassan Suraw, a father of a Gaucher patient in Kenya:
“ I officially received sad news from Head of Hematology that my daughter is having Gaucher Disease last year 2018, while she was 15 months old, and it …
As part of its strategic imperatives, one of the goals of the IGA is to have a better understanding of the impact of being diagnosed with a comorbidity such as Parkinson’s Disease or Multiple Myeloma. The long-term objective is to put into …
Introducing our 2019 #RareStars - this year we celebrate those who have made a difference in the lives of our patients and/or their families with a montage for 1 October, followed by individual framed photos of each nomination throughout …
The IGA's latest newsletter is available to download and read here
On Sunday, our regional managers and Dr Ashok Vellodi continued their medical programme in Nepal, visiting the BP Koirala Hospital in Dharan with Dr Nisha Keshry Bhatta.
Special thanks to Drs Jyoti and Prakash for helping to arrange this event …
On Saturday, 53 paediatricians from all over Kathmandu attended an evening event hosted by the IGA with Nepal Paediatric Society (NEPAS) and Maharajagunj Medicine Campus and Tribhuvan University Teaching Hospital.
The programme focussed on LSDs …
This weekend, our regional managers Suyog Sathe and Shashank Tyagi continued their medical programme in Nepal with Dr Ashok Vellodi, visiting Thamel in Kathmandu for a patient meeting.
Two families identified with Lysosomal Storage Disorders were …