Educational masterclasses
A significant part of the IGA’s work is to support access to education and training for doctors, especially in countries where there is limited knowledge and where doctors only have one or a few Gaucher patients. Our goal is to educate and inform doctors about: diagnosis; clinical management; available treatments and creating networks with a view to developing sustainable infrastructures.
Rabat, Morocco: 22 – 24th May 2019
In May 2019, the IGA flew to Rabat, Morocco and took part in a three-day educational programme that attracted 41 delegates from all over West Africa including Ghana, Morocco, Tunisia, Kenya, Rwanda, Niger, Ivory Coast, Congo and Mauritania. READ MORE...
Jakarta, Indonesia: 30th November 2018
The meeting was attended by around 30 persons including representatives from the hospital, regulatory agency, pharmacists, insurance company, the ministry of Health, doctors, medical students and the Rare Disease foundation.
The meeting was a collaborative event with the IGA working with FYMCA, Direct Relief and Shire to understand how we can work with the patients, clinicians and the Government in Indonesia to improve the lives of Gaucher patients and other LSD/Rare Disease patients. READ MORE...
Gaborone, Botswana: 1- 3rd July 2018
The IGA was invited to be part of the faculty for a meeting in Botswana of doctors from all over Africa; 36 doctors attended from 14 different countries, including: Ghana, Nigeria, Sudan, Botswana, Mauritius, Ethiopia, Kenya, Malawi and Lesotho. READ MORE...
RAREX, Johannesburg: 13-16th September 2018
In partnership with Rare Disease Africa, the IGA (formerly EGA) in collaboration with Care Beyond Diagnosis (CBD) supported 26 patient representatives to receive bursaries (travel and registration) to attend a patient huddle. The huddle was attended by 30 patients/patient representatives from all over Africa including Ghana, Kenya, Zimbabwe, Lesotho, Tanzania, Nigeria, South Africa, and Botswana. READ MORE...
Cape Town, South Africa: 17th October 2016
The Masterclass attracted physicians from all over Africa including Cameroon, Botswana, Sudan, Rwanda, South Africa and Zimbabwe. READ MORE...
