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As we continue to grow our global reach to provide a strong voice for Gaucher patients worldwide Patricia Lucki joins our team of regional managers to support the Central America region.
Patricia was born in Argentina and has lived in …
CEO, Tanya Collin-Histed writes; The IGA works closely alongside the pharmaceutical companies that have charitable access programmes to ensure no-one gets left behind.
Earlier this year several Gaucher patients applied for charitable treatment …
We love sharing Good News stories... the collaboration of Takeda and Direct Relief means that a child in Tanzania is now getting treatment for Gaucher disease through their charitable access programme.
We are pleased to announce that the Croatian Gaucher Association has now joined the IGA, taking our membership up to 52 member associations from 52 countries worldwide. (The Croatian Alliance for Rare Diseases remains a member of the IGA.)
Last week during the EWGGD in Clermont-Ferrand, our CEO Tanya Collin-Histed presented the poster on the IGA's global disease registry for neuronopathic Gaucher disease.
Working in partnership with Aparito, the IGA acted as a lead instigator, …
For all the news about International Gaucher Day, read our July newsletter here
During the EWGGD meeting in Clermont-Ferrand, we unveiled our own Rare Star:Jeremy Manuel OBE in recognition of his 25 years' dedication to the global Gaucher community.
Jeremy is featured on the 2019 poster which is now available to …
We are pleased to announce that the Catarinense Association of Patients, Friends of Gaucher and Other Rare Diseases (Brazil) have now joined the IGA, taking our membership up to 51 member associations from 52 countries …
Our June newsletter is available to download here