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- SOBRE EGA
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- APOYO ALIANZA
As the COVID 19 pandemic continues, a lot of families in our community are facing different challenges and issues. This is a challenge but we all need to find strength in each other to adapt to this inevitable change that came into our lives and try to make the best out of it.
The Gaucher community is a strong community, made out of people who trust each other, who support each other, who are changing the world for the better. And we will overcome this difficult period and go forward together because “together we are stronger”.
The IGA board and office team are all working from home now and communicating all the time through zoom calls, telephone, WhatsApp, social media and everything else that is available. Please feel free to contact us if you want to discuss a certain challenge or a problem, or if you just want to talk to someone. The IGA board members are communicating with IGA members, and they will continue to do so.
Please feel free to tag us in your isolation stories and photos on Facebook and Instagram using #rarebutnotalone #gaucherinisolation #gaucherfuninisolation #gaucher #covid19 and remember that we are all in this together!
Please try to keep safe and take care of your families, following the recommendations of the World Health Organization and we will soon share specific recommendations for Gaucher disease from the EWGGD.
Stay strong: we are in this together…