La EGA es una organización pan europea que representa los intereses de los pacientes de Gaucher y de aquellos grupos de pacientes sin ánimo de lucro de toda Europa y de otras partes del mundo.
Español ▼ conexión ▼
LINK PARA CONOCER LOS 41 PAÍSES MIEMBROS, PARA CONSEGUIR APOYO, CONSEJOS E INFORMACIÓN
Mapa
completar el mapa- Finland
- Norway
- Sweden
- Estonia
- Russian Federation
- Latvia
- Denmark
- Lithuania
- United Kingdom
- Netherlands
- Ireland
- Poland
- Germany
- Belgium
- Czech Republic
- Ukraine
- Slovakia
- Luxembourg
- Moldova, Republic of
- Austria
- France
- Switzerland
- Romania
- Slovenia
- Croatia
- Serbia
- Bosnia & Herzegovina
- Bulgaria
- Italy
- Macedonia, the Former Yugoslav Republic of
- Spain
- Greece
- Israel
Eventos
Extraordinary General Meeting
9 September 2020
On 30th September 2020 at 5.30 pm UK time the IGA will hold a short special general meeting (via zoom) to present to our members a number of changes to our constitution, which if approved will allow us to apply to become a registered charity in …
AAV Gene Therapy for neuronopathic Gaucher disease and Parkinson's disease with a GBA mutation
5 August 2020
Taking place on Monday 5th Ocober from 3-4:30pm (BST), this is the second in a series of educational webinars for our members on the latest developments in gene therapy will focus on AAV-based gene therapy and Prevail Therapeutic's approach …
IGD2020: Home Therapy webinar
5 August 2020
In view of the challenges many Gaucher patients have faced during the coronavirus pandemic, the focus of this year's IGD campaign is home therapy.
The second of our educational webinars on home therapy, this one will take place on 1 …
Ex vivo Gene Therapy for GD1
5 August 2020
The first of a series of educational webinars on the latest developments in gene therapy for Gaucher treatment, focusing on AVROBIO's lentiviral gene therapy, an ex vivo gene therapy approach for Type 1 Gaucher disease, will take place on …
EWGGD GD1 Guidelines
5 August 2020
IGA in collaboration with EWGGD to form a working group to develop International clinical management guidelines for type I Gaucher disease
On Monday 14th September at 3pm (GMT) the EWGGD/IGA will host a kick-off event to develop International …
Gaucher and Parkinson's disease: the early signs and risks to carriers
31 July 2020
We will have three panelists: prof Ari Zimran, prof Per Svenningsson and Dr Marco Baptista.
Researchers have linked Gaucher disease to a slightly increased risk of having Parkinson's disease later in life. This is also true for carriers, …
International Gaucher Day 2020
14 July 2020
Taking into consideration the challenges currently being faced by our members due to the current Covid-19 pandemic we have decided to focus this years' campaign on home therapy. Earlier this year we held a webinar and have been working …
COVID19 - home treatment webinar
28 April 2020
One of the challenges that the COVID19 situation has brought to Gaucher patients is receiving ERT infusions and at the recent EWGGD webinar recommendations were made to provide home treatment wherever possible.
A Zoom meeting has been set up for …
Biennial Members Meeting
16 April 2020
Notice is hereby given that the Biennial General Meeting of the International Gaucher Alliance will be held online via Zoom on Saturday 23 May 2020 at 7pm (UK time).
Details of the meeting including resolutions and business to transact have been …
2020 Biennial Members Meeting
4 February 2020
The IGA’s biennial members meeting and the 14th EWGGD congress will take place in Leiden, Netherlands from 23rd to 27th May 2020 and the IGA will be inviting one representative from each of its member associations to attend.
(The …