We will have three panelists: prof Ari Zimran, prof Per Svenningsson and Dr Marco Baptista.
Researchers have linked Gaucher disease to a slightly increased risk of having Parkinson's disease later in life. This is also true for carriers, who do not have the disease but can pass it to their children. While a link between these two different medical disorders, Parkinson's disease and Gaucher disease, has now been appreciated for over a decade, the basis for this association has remained elusive. Members from several countries expressed interest in this topic. They would like to know more details about this link from the professionals and to have an opportunity to ask questions and get answers. As one of the strategic imperatives of the IGA is to empower our members and support them to get an education, we decided to hold a series of educational webinars/townhall meetings.
This topic is becoming a very hot topic not just for patients with GD but also for carriers (parents, children, and other close family members). There are more and more doctors and researchers interested in this area and a lot of conferences where GBA-PD is part of the program.
The Townhall meeting format means that there will be a lot of time for discussion and for participants to ask questions and share their experiences.