L´EGA est une association européenne qui représente les intérêts des patients de Gaucher ainsi que ceux des associations de patients de Gaucher sans but lucratif en Europe et dans le monde entier.
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LIEN VERS UN DE NOS 41 PAYS MEMBRES POUR RECEVOIR DES CONSEILS LOCAUX ET DES NOUVELLES
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fermer- Finland
- Norway
- Sweden
- Estonia
- Russian Federation
- Latvia
- Denmark
- Lithuania
- United Kingdom
- Netherlands
- Ireland
- Poland
- Germany
- Belgium
- Czech Republic
- Ukraine
- Slovakia
- Luxembourg
- Moldova, Republic of
- Austria
- France
- Switzerland
- Romania
- Slovenia
- Croatia
- Serbia
- Bosnia & Herzegovina
- Bulgaria
- Italy
- Macedonia, the Former Yugoslav Republic of
- Spain
- Greece
- Israel
Nouvelles & Événements
Online events - Autumn programme
6 août 2020
We are excited to share with you our schedule of virtual meetings taking place throughout the Autumn which you can easily book on to now...
Starting in September, we are offering a series of online educational …AAV Gene Therapy for neuronopathic Gaucher disease
5 août 2020
Taking place on Monday 5th Ocober from 3-4:30pm (GMT), this is the second in a series of educational webinars for our members on the latest developments in gene therapy will focus on AAV-based gene therapy and Prevail Therapeutic's approach …
IGD2020: Home Therapy webinar
5 août 2020
In view of the challenges many Gaucher patients have faced during the coronavirus pandemic, the focus of this year's IGD campaign is home therapy.
The second of our educational webinars on home therapy, this one will take place on 1 …
Ex vivo Gene Therapy for GD1
5 août 2020
The first of a series of educational webinars on the latest developments in gene therapy for Gaucher treatment, focusing on AVROBIO's lentiviral gene therapy, an ex vivo gene therapy approach for Type 1 Gaucher disease, will take place on …
EWGGD GD1 Guidelines
5 août 2020
IGA in collaboration with EWGGD to form a working group to develop International clinical management guidelines for type I Gaucher disease
On Monday 14th September at 3pm (GMT) the EWGGD/IGA will host a kick-off event to develop International …
Gaucher and Parkinson's disease: the early signs and risks to carriers
31 juillet 2020
We will have three panelists: prof Ari Zimran, prof Per Svenningsson and Dr Marco Baptista.
Researchers have linked Gaucher disease to a slightly increased risk of having Parkinson's disease later in life. This is also true for carriers, …
Educational webinars
31 juillet 2020
We will soon be sharing our schedule of virtual meetings taking place throughout the Autumn which you will be able to book on to...
We are very excited to be offering a series of online educational webinars for our …Home therapy with enzyme replacement therapy for Gaucher disease: a short statement from the European Working Group on Gaucher Disease (EWGGD)
30 juillet 2020
Statement on Home Therapy
Home therapy with enzyme replacement therapy for Gaucher disease: a short statement from the European Working Group on Gaucher Disease (EWGGD)
Since the availability of enzyme replacement therapy for Gaucher disease …
IGD Home Therapy Photo Competition
22 juillet 2020
#IGD2020 will focus on home therapy and our campaign will be totally online with no printed materials or merchandise.
We will be producing an online poster which can be shared on social media to promote the day and to raise awareness and would …
International Gaucher Day 2020
14 juillet 2020
Taking into consideration the challenges currently being faced by our members due to the current Covid-19 pandemic we have decided to focus this years' campaign on home therapy. Earlier this year we held a webinar and have been working …