L´EGA est une association européenne qui représente les intérêts des patients de Gaucher ainsi que ceux des associations de patients de Gaucher sans but lucratif en Europe et dans le monde entier.
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LIEN VERS UN DE NOS 41 PAYS MEMBRES POUR RECEVOIR DES CONSEILS LOCAUX ET DES NOUVELLES
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fermer- Finland
- Norway
- Sweden
- Estonia
- Russian Federation
- Latvia
- Denmark
- Lithuania
- United Kingdom
- Netherlands
- Ireland
- Poland
- Germany
- Belgium
- Czech Republic
- Ukraine
- Slovakia
- Luxembourg
- Moldova, Republic of
- Austria
- France
- Switzerland
- Romania
- Slovenia
- Croatia
- Serbia
- Bosnia & Herzegovina
- Bulgaria
- Italy
- Macedonia, the Former Yugoslav Republic of
- Spain
- Greece
- Israel
Nouvelles & Événements
AVROBIO explore gene therapy as a potential treatment for Gaucher disease
10 avril 2019
The IGA are excited to be working in partnership with Avrobio to explore gene therapy as a potential treatment for Gaucher patients.
AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing …March newsletter
26 mars 2019
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Election of new Chair and Vice-Chair
6 mars 2019
Following Pascal Niemeyer’s resignation from the IGA board of directors, we are pleased to announce that Vesna Aleksovska has been elected Chair and will be supported by Biljana Jovanović, who has been elected Vice-Chair. Both bring a …
February newsletter
28 février 2019
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Pascal Niemeyer resigns as IGA Chairman and Director
13 février 2019
Pascal Niemeyer, Chairman of the IGA since 2016, has decided for personal reasons to resign both, as chairman and as director of the IGA.
The IGA regrets but will respect his decision.
We are very thankful for Pascal´s engagement for the …
Australia & New Zealand to join the IGA
12 février 2019
We are pleased to announce that the Gaucher Association of Australia & New Zealand have now joined the IGA, taking our membership up to 50 member associations from 51 countries worldwide.
Looking for Volunteers
22 janvier 2019
Patient/Parent focus group for Global Patient Registry for nGD – are you interested in taking part?
Last week the IGA announced the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in …
January 2019 newsletter
22 janvier 2019
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Global Patient Registry for nGD
14 janvier 2019
The International Gaucher Alliance (IGA) are today pleased to announce the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in order to increase disease knowledge and understanding, but also …
December newsletter
18 décembre 2018
Read our latest newsletter here