LIEN VERS UN DE NOS 41 PAYS MEMBRES POUR RECEVOIR DES CONSEILS LOCAUX ET DES NOUVELLES

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Dernières Nouvelles

  • Election of new Chair and Vice-Chair

    6 mars 2019

    Following Pascal Niemeyer’s resignation from the IGA board of directors, we are pleased to announce that Vesna Aleksovska has been elected Chair and will be supported by Biljana Jovanović, who has been elected Vice-Chair.  Both bring a …

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  • February newsletter

    28 février 2019

    Read our latest newsletter here

  • Pascal Niemeyer resigns as IGA Chairman and Director

    13 février 2019

    Pascal Niemeyer, Chairman of the IGA since 2016, has decided for personal reasons to resign both, as chairman and as director of the IGA.

    The IGA regrets but will respect his decision.

    We are very thankful for Pascal´s engagement for the …

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  • Australia & New Zealand to join the IGA

    12 février 2019

    We are pleased to announce that the Gaucher Association of Australia & New Zealand have now joined the IGA, taking our membership up to 50 member associations from 51 countries worldwide.

  • Looking for Volunteers

    22 janvier 2019

    Patient/Parent focus group for Global Patient Registry for nGD – are you interested in taking part?

    Last week the IGA announced the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in …

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  • January 2019 newsletter

    22 janvier 2019

    Read our latest newsletter here

  • Global Patient Registry for nGD

    14 janvier 2019

    The International Gaucher Alliance (IGA) are today pleased to announce the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in order to increase disease knowledge and understanding, but also …

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  • December newsletter

    18 décembre 2018

    Read our latest newsletter here

  • Mongolia to join the IGA

    10 décembre 2018

    We are pleased to announce that the ХОВОР ӨВЧНИЙ ЭСРЭГ ХАМТДАА "Together in the Fight Against Rare Diseases" (Mongolia) have now joined the IGA, taking our membership up to 49 member associations from 49 …

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  • November newsletter

    30 novembre 2018

    Read the IGA's latest newsletter here