- 15-10-2020Developing Digital Endpoints For the Gaucher Community
- 15-10-2020AVAILABLE TO WATCH NOW: AAV-Based Gene Therapy and Prevail Therapeutic's Approach For Neuronopathic Gaucher Diseases & Parkinson's Disease with a GBA Mutation
- 13-10-2020Encouraging the Voice of the Patient In a New Trial Looking At In Utero Treatment For NGD At University of California San Francisco
- 05-10-2020AVAILABLE TO WATCH NOW: Ex Vivo Gene Therapy For Type 1 Gaucher Disease
LINK TO ONE OF OUR 57 MEMBER ASSOCIATIONS FOR LOCAL SUPPORT, ADVICE AND NEWS
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IGA Downloads
The IGA is happy to publish the following documents for those wishing to learn more about the IGA and its work.
Please feel free to download them from this page
- IGA's Strategic Plan 2021-2023
- IGA Best Practice leaflet 2018
- IGA Best Practice Poster 2018
- IGA Articles of Association
- IGA Certificate of Registration
- IGA Code of Practice on Relationships with the Pharmaceutical Industry
- Addendum to IGA Code of Practice on Relationships with the Pharmaceutical Industry - Glossary
- IGA volunteer charter
- EGA Posters
- EGA Scientific Paper 2014: a survey of member patient organisations’ activities, healthcare environments and concerns
