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International Gaucher Day 2017

16 May 2017


We are already very  busy planning for this year’s International Gaucher Day (IGD)  which will take place on 1st October 2017.


This year we want to show how people live everyday life with Gaucher disease, how strong and successful we are despite our condition. We therefore request that our  members contribute towards this by sharing their own stories and pictures which reflect living with Gaucher disease.

All of the stories and photos that you submit  will be shared on our Facebook page and website.  The one story that the EGA Board judges to stand out above all others in terms of interest and inspiration  will feature in the EGA Members Newsletter dedicated to IGD. The subject of that story will also become the poster  person featuring prominantly on the campaign material for 2017. 


So go ahead; share your story and become the face of IGD 2017. 


•         Please submit your stories and photo images

•         Photo images should be in jpg/jpeg file format

•         By submitting the stories and photos you are giving the European Gaucher Alliance (EGA)  permission to use in their publications including their website and other publications and a signed  consent formwill be required. 

•         The closing date for all submissions is 4th June 2017.


To submit your stories or for further assisitance please contact  Chris at  or Biljana at   


We are really excited to recieve YOUR stories and feel this is a great opportinity to showcase YOUR successes.