LINK TO ONE OF OUR 50 MEMBER COUNTRIES FOR LOCAL SUPPORT, ADVICE AND NEWS

view map
close
  • Finland
  • Norway
  • Sweden
  • Estonia
  • Russian Federation
  • Latvia
  • Denmark
  • Lithuania
  • United Kingdom
  • Netherlands
  • Ireland
  • Poland
  • Germany
  • Belgium
  • Czech Republic
  • Ukraine
  • Slovakia
  • Luxembourg
  • Moldova, Republic of
  • Austria
  • France
  • Switzerland
  • Romania
  • Slovenia
  • Croatia
  • Serbia
  • Bosnia & Herzegovina
  • Bulgaria
  • Italy
  • Macedonia, the Former Yugoslav Republic of
  • Spain
  • Greece
  • Israel

News & Events

  • April newsletter

    25 April 2019

    Our latest newsletter is now available - read about the IGA's plans to expand its global reach and its partnership with AVROBIO to explore gene therapy as a potential treatment for Gaucher patients here 

  • AVROBIO explore gene therapy as a potential treatment for Gaucher disease

    10 April 2019

    The IGA are excited to be working in partnership with Avrobio to explore gene therapy as a potential treatment for Gaucher patients.  

    AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing …

    read more »

  • March newsletter

    26 March 2019

    Read our latest newsletter here

  • Election of new Chair and Vice-Chair

    6 March 2019

    Following Pascal Niemeyer’s resignation from the IGA board of directors, we are pleased to announce that Vesna Aleksovska has been elected Chair and will be supported by Biljana Jovanović, who has been elected Vice-Chair.  Both bring a …

    read more »

  • February newsletter

    28 February 2019

    Read our latest newsletter here

  • Pascal Niemeyer resigns as IGA Chairman and Director

    13 February 2019

    Pascal Niemeyer, Chairman of the IGA since 2016, has decided for personal reasons to resign both, as chairman and as director of the IGA.

    The IGA regrets but will respect his decision.

    We are very thankful for Pascal´s engagement for the …

    read more »

  • Australia & New Zealand to join the IGA

    12 February 2019

    We are pleased to announce that the Gaucher Association of Australia & New Zealand have now joined the IGA, taking our membership up to 50 member associations from 51 countries worldwide.

  • Looking for Volunteers

    22 January 2019

    Patient/Parent focus group for Global Patient Registry for nGD – are you interested in taking part?

    Last week the IGA announced the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in …

    read more »

  • January 2019 newsletter

    22 January 2019

    Read our latest newsletter here

  • Global Patient Registry for nGD

    14 January 2019

    The International Gaucher Alliance (IGA) are today pleased to announce the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in order to increase disease knowledge and understanding, but also …

    read more »