News & Events

AVAILABLE TO WATCH NOW - Educational webinar: EWGGD GD1 guidelines

17 September 2020

The EWGGD and IGA recently co-hosted a webinar to set the scene to explore what should be included in new international patient centric guidelines for Type 1 Gaucher disease.  The webinar recording can be watched here. 

Following this, …

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AVAILABLE TO WATCH NOW - Educational webinar: Gaucher & Parkinson's disease

17 September 2020

If you missed the educational webinars on Gaucher & Parkinson's disease - the early signs and risks to carriers you can watch it now

Extraordinary General Meeting

9 September 2020

On 30th September 2020 at 5.30 pm UK time the IGA will hold a short special general meeting (via zoom) to present to our members a number of changes to our constitution, which if approved will allow us to apply to become a registered charity in …

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A letter from Anne-Grethe Lauridsen

8 September 2020

Dear friends, IGA members and everyone else involved in the Gaucher community... it is with great sadness and a heavy heart that I write this message to you all.

Due to serious health issues I have taken the very difficult and yet easy decision …

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Online events - Autumn programme

6 August 2020

We are excited to share with you our schedule of virtual meetings taking place throughout the Autumn which you can easily book on to now... 

Starting in September, we are offering a series of online educational …

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AAV Gene Therapy for neuronopathic Gaucher disease and Parkinson's disease with a GBA mutation

5 August 2020

Taking place on Monday 5th Ocober from 3-4:30pm (BST), this is the second in a series of educational webinars for our members on the latest developments in gene therapy will focus on AAV-based gene therapy and Prevail Therapeutic's approach …

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IGD2020: Home Therapy webinar

5 August 2020

In view of the challenges many Gaucher patients have faced during the coronavirus pandemic, the focus of this year's IGD campaign is home therapy.

The second of our educational webinars on home therapy, this one will take place on 1 …

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Ex vivo Gene Therapy for GD1

5 August 2020

The first of a series of educational webinars on the latest developments in gene therapy for Gaucher treatment, focusing on AVROBIO's lentiviral gene therapy, an ex vivo gene therapy approach for Type 1 Gaucher disease, will take place on …

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EWGGD GD1 Guidelines

5 August 2020

IGA in collaboration with EWGGD to form a working group to develop International clinical management guidelines for type I Gaucher disease

On Monday 14th September at 3pm (GMT) the EWGGD/IGA will host a kick-off event to develop International …

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Gaucher and Parkinson's disease: the early signs and risks to carriers

31 July 2020

We will have three panelists: prof Ari Zimran, prof Per Svenningsson and Dr Marco Baptista.

Researchers have linked Gaucher disease to a slightly increased risk of having Parkinson's disease later in life. This is also true for carriers, …

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