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News & Events
October newsletter
1 November 2018
Read all about the IGA's biennial meeting that took place in Riga earlier this month here
EWGGD 2019 'Save the Date'
24 October 2018
The 13th EWGGD meeting will take place from 4-6 July 2019 in Clermont-Ferrand, France. For more details please visit the EWDDG website
The EGA becomes the IGA
15 October 2018
We announced our new name "International Gaucher Alliance" (IGA) at the biennial members meeting in Riga on 15 October 2018. Watch the video of our rebranding journey here.
#IGD2018 #rarestars videos
2 October 2018
Following a succesful social media campaign for this years' International Gaucher Day we are happy to share all our #rarestars videos over on our YouTube channel. Please feel free to share these on your own website and social media …
September newsletter
24 September 2018
Read the latest newsletter from the EGA here
Turkey and Kazakhstan to join the EGA
11 September 2018
We are pleased to announce that the MPSTURK (Turkey) and Public Association “Children with disabilities with Gaucher Disease” (Kazakhstan) have now joined the EGA, taking our membership up to 48 member associations from 48 countries …
August Newsletter
13 August 2018
Read the latest newsletter from the EGA here
Biennial Members Meeting – 15 & 16 October 2018
4 July 2018
The EGA’s biennial members meeting will now take place in Riga (Latvia) on Monday 15 and Tuesday 16 October 2018 at the Tallink Hotel
We will be inviting ONE representative from each of our member associations to attend our meeting.
…Results of EGA 2018/2020 Election
28 June 2018
Following the recent board member elections for 2018/2020 we are pleased to announce that the new board, who will take effect from the close of the biennial members meeting in October 2018, will be:
Vesna Aleksovska (Macedonia)
Diana …Morocco to join the EGA
21 June 2018
We are pleased to announce that the Moroccan Vaincre les Maladies Lysosomales (Espoir VML Maroc) has now joined the EGA, taking our membership up to 47 countries worldwide.
