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One of the challenges that the COVID19 situation has brought to Gaucher patients is receiving ERT infusions and at the recent EWGGD webinar recommendations were made to provide home treatment wherever possible.
A Zoom meeting has been set up for our members on Friday 1 May at 3pm (UK time), hosted by Fernanda Torquati and Kate Theochari who have both been successful in their home countries of Italy and Greece respectively in lobbying their governments to authorise intravenous home therapy.
The purpose of this meeting is to share best practice regarding home therapy and answer additional questions. If you are not a member of the IGA but would like to join the meeting please email firstname.lastname@example.org who will register your attendance and send you a link to join the call.