LINK TO ONE OF OUR 57 MEMBER ASSOCIATIONS FOR LOCAL SUPPORT, ADVICE AND NEWS
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Events
Bone disease webinar
31 March 2021
Bone involvement is one of the most prevalent aspects of GD and a major cause of pain, disability, and reduced quality of life. All three types of Gaucher disease have bone disease in common and can have serious complications in those …
Wellness for Gaucher disease patients
19 February 2021
As many countries are still in lockdown, people including those living with Gaucher disease are spending a lot of time at home. The IGA is supporting its members in these difficult times with a webinar: ‘Wellness for …
Newborn screening webinar
2 October 2020
Newborn screening is the process of testing newborn babies for serious, but treatable, conditions including Gaucher disease. This webinar will present the basis, benefits, experiences and working with governments to get …
Biennial Members meeting: Our members share best practice and highlight challenges – coming together as a community
2 October 2020
Following the postponement of our face-to-face Biennial members meeting this year in Leiden, we are excited to share with you the details of our virtual meetings taking place in October which you can book on to now…
The …
Biennial Members meeting: How we are working to improve the lives of the global Gaucher community
2 October 2020
Following the postponement of our face-to-face Biennial members meeting this year in Leiden, we are excited to share with you the details of our virtual meetings taking place in October which you can book on to now…
The first will take …
Digital Health Technology webinar
10 September 2020
As part of the IGA’s series of educational webinars we will be hosting one on the growing use of digital technology to capture patient data, empower patients to be more involved in their health journey, as well as recognise the anxiety and …
Extraordinary General Meeting
9 September 2020
On 30th September 2020 at 5.30 pm UK time the IGA will hold a short special general meeting (via zoom) to present to our members a number of changes to our constitution, which if approved will allow us to apply to become a registered charity in …
AAV Gene Therapy for neuronopathic Gaucher disease and Parkinson's disease with a GBA mutation
5 August 2020
Taking place on Monday 5th Ocober from 3-4:30pm (BST), this is the second in a series of educational webinars for our members on the latest developments in gene therapy will focus on AAV-based gene therapy and Prevail Therapeutic's approach …
IGD2020: Home Therapy webinar
5 August 2020
In view of the challenges many Gaucher patients have faced during the coronavirus pandemic, the focus of this year's IGD campaign is home therapy.
The second of our educational webinars on home therapy, this one will take place on 1 …
Ex vivo Gene Therapy for GD1
5 August 2020
The first of a series of educational webinars on the latest developments in gene therapy for Gaucher treatment, focusing on AVROBIO's lentiviral gene therapy, an ex vivo gene therapy approach for Type 1 Gaucher disease, will take place on …
