Newborn screening is the process of testing newborn babies for serious, but treatable, conditions including Gaucher disease. This webinar will present the basis, benefits, experiences and working with governments to get …
Following the postponement of our face-to-face Biennial members meeting this year in Leiden, we are excited to share with you the details of our virtual meetings taking place in October which you can book on to now…
The …
Following the postponement of our face-to-face Biennial members meeting this year in Leiden, we are excited to share with you the details of our virtual meetings taking place in October which you can book on to now…
The first will take …
As part of the IGA’s series of educational webinars we will be hosting one on the growing use of digital technology to capture patient data, empower patients to be more involved in their health journey, as well as recognise the anxiety and …
On 30th September 2020 at 5.30 pm UK time the IGA will hold a short special general meeting (via zoom) to present to our members a number of changes to our constitution, which if approved will allow us to apply to become a registered charity in …
Taking place on Monday 5th Ocober from 3-4:30pm (BST), this is the second in a series of educational webinars for our members on the latest developments in gene therapy will focus on AAV-based gene therapy and Prevail Therapeutic's approach …
In view of the challenges many Gaucher patients have faced during the coronavirus pandemic, the focus of this year's IGD campaign is home therapy.
The second of our educational webinars on home therapy, this one will take place on 1 …
The first of a series of educational webinars on the latest developments in gene therapy for Gaucher treatment, focusing on AVROBIO's lentiviral gene therapy, an ex vivo gene therapy approach for Type 1 Gaucher disease, will take place on …
IGA in collaboration with EWGGD to form a working group to develop International clinical management guidelines for type I Gaucher disease
On Monday 14th September at 3pm (GMT) the EWGGD/IGA will host a kick-off event to develop International …
We will have three panelists: prof Ari Zimran, prof Per Svenningsson and Dr Marco Baptista.
Researchers have linked Gaucher disease to a slightly increased risk of having Parkinson's disease later in life. This is also true for carriers, …