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Following the success of the 2018 'Rare Stars: Giving hope, improving lives' campaign, we are continuing the theme but with a more personal focus in those unseen rare stars who have shown support to Gaucher patients during their journey. This might be a parent, a sibling, a friend, an advocate or their own doctor/nurse. Our 2019 headline will be "Rare Stars: Bringing hope, improving lives"
We will be asking you to nominate your own rare star by sending us a photo with some words about how they have made a difference to your life and then we will create a collage of these to share on IGD.
We are busy with our designer producing a set of materials which we will share with you very soon, together with more details about #IGD2019 so remember to follow us here and share our posts to raise awareness using #rarebutnotalone #rarestars #togetherwearestronger