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Taking into consideration the challenges currently being faced by our members due to the current Covid-19 pandemic we have decided to focus this years' campaign on home therapy. Earlier this year we held a webinar and have been working alongside our members to help with letters of support to lobby their governments where needed, using the support and experience of patient advocates in Italy and Greece.
We are asking our members to share their experiences, stories and short statements about how home therapy has/could improve their quality of life as a Gaucher patient and will share these (with permission) across our social media platforms leading up to and on the day.
Our 2020 campaign will be totally online with no printed materials or merchandise. We will be hosting a webinar on 1 October – more details to follow.
Please support this year’s IGD campaign on 1 October 2020 and share your own ideas and suggestions to mark #IGD2020 with us by emailing firstname.lastname@example.org