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News & Events

  • December newsletter

    18 December 2018

    Read our latest newsletter here

  • Mongolia to join the IGA

    10 December 2018

    We are pleased to announce that the ХОВОР ӨВЧНИЙ ЭСРЭГ ХАМТДАА "Together in the Fight Against Rare Diseases" (Mongolia) have now joined the IGA, taking our membership up to 49 member associations from 49 …

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