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News & Events

  • GDPR Changes. Tell us how you want to be contacted.

    30 April 2018

    GDPR

    The Data Protection Law is Changing...

    Due to changes in data protection legislation, soon the European Gaucher Alliance won’t be able to contact you about any of our services or activities unless you explicitly give …

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  • Pakistan to join the EGA

    23 April 2018

    We are pleased to announce that the Pakistan Lysosomal Storade Disorders Society has now joined the EGA, taking our membership up to 46 countries worldwide.

  • EGA Board Membership Opportunities

    10 April 2018

    This year the EGA will be holding elections to form its new board ahead of the biennial members meeting in Genoa, Italy.  There are eleven vacancies to fill.  We are writing to you now to give you time to consider whether you would like to …

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  • Advocacy training grant

    10 April 2018

    EGA commitment to training

    For a number of years an integral part of the EGA work programme has been the continued support of training, education and the sharing of knowledge amongst patient advocates.  The EGA are pleased to announce the …

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