LINK TO ONE OF OUR 55 MEMBER ASSOCIATIONS FOR LOCAL SUPPORT, ADVICE AND NEWS

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News & Events

  • December 2019 newsletter

    17 December 2019

    Our latest newsletter includes a report from the 5th International Gaucher conference on bone disease, the executive summary from the African Taskforce and a good news story from Sudan where the IGA was able to get treatment to a young girl.  …

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  • IGA's membership grows to 55 member associations from 54 countries

    12 December 2019

    We’re delighted to announce three new patient groups have joined the IGA, bringing our membership up to 55 member associations from 54 countries:

    • Colombian Association of Patients with Lysosomal Storage Diseases
    • Tunisian Association …

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