We are pleased to announce that the Catarinense Association of Patients, Friends of Gaucher and Other Rare Diseases (Brazil) have now joined the IGA, taking our membership up to 51 member associations from 52 countries …
Our June newsletter is available to download here
As part of IGD2019 "Rare Stars: Bringing hope, improving lives" we are looking into the possibility of producing the IGD2019 logo as temporary tattoos* which we will send to each of our member patient groups to share with …
Following the announcement of our 2019 campaign for IGD "Rare Stars: Bringing hope, improving lives" we would like to ask you to nominate your own Rare Star - this should be someone who has made a difference in your life as a …