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We are pleased to announce that the Croatian Gaucher Association has now joined the IGA, taking our membership up to 52 member associations from 52 countries worldwide. (The Croatian Alliance for Rare Diseases remains a member of the IGA.)
Last week during the EWGGD in Clermont-Ferrand, our CEO Tanya Collin-Histed presented the poster on the IGA's global disease registry for neuronopathic Gaucher disease.
Working in partnership with Aparito, the IGA acted as a lead instigator, …
For all the news about International Gaucher Day, read our July newsletter here
During the EWGGD meeting in Clermont-Ferrand, we unveiled our own Rare Star:Jeremy Manuel OBE in recognition of his 25 years' dedication to the global Gaucher community.
Jeremy is featured on the 2019 poster which is now available to …