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News & Events
Orphazyme complete enrolment in Phase II clinical trial
30 August 2019
Orphazme have just announced their interim report detailing their activities and achievements for the first half of 2019 and we’re thrilled about one of their milestones: they have completed enrolment in their Phase II Gaucher clinical trial …
August 2019 newsletter
29 August 2019
Read all the latest news from the IGA here
IGA expands its global reach to Central America
7 August 2019
As we continue to grow our global reach to provide a strong voice for Gaucher patients worldwide Patricia Lucki joins our team of regional managers to support the Central America region.
Patricia was born in Argentina and has lived in …Sanofi Genzyme provide ERT to three Sudanese children through their Charitable Access Programme
7 August 2019
CEO, Tanya Collin-Histed writes; The IGA works closely alongside the pharmaceutical companies that have charitable access programmes to ensure no-one gets left behind.
Earlier this year several Gaucher patients applied for charitable treatment …
Six year old Tanzanian child gets treatment
6 August 2019
We love sharing Good News stories... the collaboration of Takeda and Direct Relief means that a child in Tanzania is now getting treatment for Gaucher disease through their charitable access programme.
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