LINK TO ONE OF OUR 57 MEMBER ASSOCIATIONS FOR LOCAL SUPPORT, ADVICE AND NEWS
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News & Events
COVID19 - home treatment webinar
28 April 2020
One of the challenges that the COVID19 situation has brought to Gaucher patients is receiving ERT infusions and at the recent EWGGD webinar recommendations were made to provide home treatment wherever possible.
A Zoom meeting has been set up for …
COVID19 & home treatment
28 April 2020
The International Gaucher Alliance is an umbrella organization with more than 50 members all around the world. The IGA represents the interests of the Gaucher Community.
Gaucher disease is a rare disease with an incidence of about 1 in …
Biennial Members Meeting
16 April 2020
Notice is hereby given that the Biennial General Meeting of the International Gaucher Alliance will be held online via Zoom on Saturday 23 May 2020 at 7pm (UK time).
Details of the meeting including resolutions and business to transact have been …
Notes from the EWGGD webinar on 1 April
15 April 2020
Self-isolation:
Follow Ministry of Health guidelines for individual countries
Gaucher patients with co-morbidities and chronic illnesses have been advised to self-isolate
Patients with underlying lung disease or splenectomy or other …
Results of the IGA's Board Election
14 April 2020
Following the recent IGA board elections, we are delighted to inform you that we will have eight board directors of IGA:
- Suyog Sathe (India)
- Yoram Muller (Israel)
- Anne-Grethe Lauridsen (Denmark)
- Biljana Jovanovic (Serbia)
- Aviva …
The IGA has co-authored 'The Definition of Neuronopathic Gaucher disease'
7 April 2020
The IGA has co-authored an article 'The Definition of Neuronopathic Gaucher disease' published in the Journal of Inherited Metabolic Disease.
CEO, Tanya Collin-Histed writes "Proud to have been a part of this publication. These …
IGA co-authors a scientific paper titled 'The road to biosimilars in rare diseases – ongoing lessons from Gaucher disease
6 April 2020
As biosimilars become a 'hot topic' in the rare disease world, the IGA started to educate its members about them two years ago with a presentation from Prof Dingermann on what biosimilars are at our biennial members meeting in Riga, 2018. We …
