News & Events

Minutes from IGA's Biennial General Meeting

29 May 2020

A note from our Chair:

Thank you to all those who attended the IGA’s Biennial General Meeting on the 23rd of May, 2020. It was our pleasure to see all of you virtually and we appreciate that you ​decided to spend Saturday …

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COVID-19: IGA and European GD Network Gaucher Research Survey

29 May 2020

Calling all Gaucher patients

We would like to ask you to complete the following patient survey to help us understand the impact of the disease on Gaucher patients, their families and supporters and to provide invaluable research data with the …

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The IGA initiates a global discussion on home therapy for Gaucher patients

14 May 2020

A Zoom meeting was held for our members on Friday 1 May to share best practice regarding home therapy, hosted by Fernanda Torquati and Kate Theochari who have both been active in their home countries of Italy and Greece respectively in lobbying …

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AVROBIO to Collaborate with Saladax Biomedical

12 May 2020

AVROBIO has announced a partnership with Saladax Biomedical to develop a new blood test that will simplify and streamline therapeutic drug monitoring (TDM) during the conditioning phase of the lentiviral gene therapy process.

Full details can be …

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