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News & Events
Orphazyme phase 2 study of arimoclomol in Gaucher disease
24 June 2020
Sharing news from Orphazyme A/S, our CEO Tanya Collin-Histed writes:
“The news is a step forward for Gaucher disease patients and their families. We are excited to hear that there was evidence of arimoclomol’s ability to cross the …
IGA and CENTOGENE Team Up to Ensure myLSDapp Provides the Highest Level of Patient Data Protection
15 June 2020
The International Gaucher Alliance (IGA) has teamed up with CENTOGENE to review the data protection measures of myLSDapp. The collaboration not only ensured high levels of security, but led to further adaptations of the patient consent forms related …
