LINK TO ONE OF OUR 57 MEMBER ASSOCIATIONS FOR LOCAL SUPPORT, ADVICE AND NEWS

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News & Events

  • Online events - Autumn programme

    6 August 2020

    We are excited to share with you our schedule of virtual meetings taking place throughout the Autumn which you can easily book on to now... 

    Starting in September, we are offering a series of online educational …

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  • AAV Gene Therapy for neuronopathic Gaucher disease and Parkinson's disease with a GBA mutation

    5 August 2020

    Taking place on Monday 5th Ocober from 3-4:30pm (BST), this is the second in a series of educational webinars for our members on the latest developments in gene therapy will focus on AAV-based gene therapy and Prevail Therapeutic's approach …

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  • IGD2020: Home Therapy webinar

    5 August 2020

    In view of the challenges many Gaucher patients have faced during the coronavirus pandemic, the focus of this year's IGD campaign is home therapy.

    The second of our educational webinars on home therapy, this one will take place on 1 …

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  • Ex vivo Gene Therapy for GD1

    5 August 2020

    The first of a series of educational webinars on the latest developments in gene therapy for Gaucher treatment, focusing on AVROBIO's lentiviral gene therapy, an ex vivo gene therapy approach for Type 1 Gaucher disease, will take place on …

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  • EWGGD GD1 Guidelines

    5 August 2020

    IGA in collaboration with EWGGD to form a working group to develop International clinical management guidelines for type I Gaucher disease

    On Monday 14th September at 3pm (GMT) the EWGGD/IGA will host a kick-off event to develop International …

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