News & Events

AVAILABLE TO WATCH NOW - Educational webinar: EWGGD GD1 guidelines

17 September 2020

The EWGGD and IGA recently co-hosted a webinar to set the scene to explore what should be included in new international patient centric guidelines for Type 1 Gaucher disease.  The webinar recording can be watched here. 

Following this, …

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AVAILABLE TO WATCH NOW - Educational webinar: Gaucher & Parkinson's disease

17 September 2020

If you missed the educational webinars on Gaucher & Parkinson's disease - the early signs and risks to carriers you can watch it now

Digital Health Technology webinar

10 September 2020

As part of the IGA’s series of educational webinars we will be hosting one on the growing use of digital technology to capture patient data, empower patients to be more involved in their health journey, as well as recognise the anxiety and …

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Extraordinary General Meeting

9 September 2020

On 30th September 2020 at 5.30 pm UK time the IGA will hold a short special general meeting (via zoom) to present to our members a number of changes to our constitution, which if approved will allow us to apply to become a registered charity in …

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A letter from Anne-Grethe Lauridsen

8 September 2020

Dear friends, IGA members and everyone else involved in the Gaucher community... it is with great sadness and a heavy heart that I write this message to you all.

Due to serious health issues I have taken the very difficult and yet easy decision …

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