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News & Events
January 2021 newsletter
19 January 2021
Our first newsletter of 2021 is now available to read, sharing with you the opportunity to get involved in our Gene Therapy focus group and a joint statement with the EWGGD on COVID-19 vaccinations for patients with Gaucher disease.
Gene Therapy Focus Group
14 January 2021
The IGA is looking for Gaucher patients and parent/caregivers to join a focus group to discuss gene therapy. We are seeking to understand the concerns and questions the community has around this potential new treatment. The focus group will last for …
Vaccination program for COVID-19 in patients with Gaucher disease
14 January 2021
The EWGGD and IGA are standing together with the Gaucher patients’ community in this challenging time of the COVID-19 pandemic, and we are strongly supportive of the vaccination program for COVID-19 and hopes that any patient who is offered …
A Charitable Access Program for patients with lysosomal storage disorders in underserved communities worldwide
8 January 2021
A paper on a Charitable Access Program for patients with lysosomal storage disorders in underserved communities worldwide has now been published online on the Orphanet Journal of Rare Diseases (OJRD) website.
IGA's CEO, Tanya Collin-Histed …
