Living with a rare disease like Gaucher disease is not always easy, especially when you are a young person. The EGA believes that young people, more than others, have the need to share their thoughts about education, work, raising a family and psychological aspects, with other young patients.
This is why the EGA developed the Go with Gaucher project for young - adult Gaucher patients from all member associations, giving them a unique opportunity to meet their peers and develop their skills.
The EGA is convinced that this project will help to improve the quality of life of the participants, broaden their horizons and also support the work of finding and strengthening the future leaders of the EGA and its member associations.
This is an event for young Gaucher patients representing member associations of EGA. Participation is by invitation only. If you are interested, please contact your national Gaucher association.
Deadline for registration is Sunday 6th August 2017