International Gaucher Day 'Rare But Not Alone'

#IGD2019 Rare Stars - Bringing hope, improving lives

International Gaucher Day (IGD) was launched in 2014 and is celebrated annually on 1st October to raise awareness of Gaucher disease.

Following the success of the 2018 'Rare Stars' campaign, we are continuing the theme this year, but with a more personal focus on those unseen rare stars who have shown support to Gaucher patients during their journey. This might be a parent, a sibling, a friend, an advocate or a clinician (doctor, nurse, etc.)

 

Nominate your own rare star

Use this nomination and consent form and return it to jo@gaucheralliance.org together with a photo of your rare star. 

Your photo should be:

  • a jpg file
  • in focus
  • high resolution
  • no bigger than 5mb

All photos submitted will be used to create a montage that will be released on 1 October and individual rare stars will be framed and shared on social media throughout the month of October.

Mark it with ink!

All IGA member patient groups can order up to 300 #IGD2019 temporary tattoos and have been sent an order form. Please email jo@gaucheralliance.org if you have not received yours. 

Orders must be received before 30 June 2019 and the IGA will cover the cost of merchandise and shipping to IGA members only.

Please share your support by posting photos of you wearing your tattoos on social media using #IGD2019 #rarestars #rarebutnotalone

For non-member patient groups and other individuals wishing to support our campaign: tattoos can be purchased directly from the manufacturer. Please email info@schooltattoos.ca for more details. 

Please share our Mark it with Ink postcard with your friends, family and colleagues.  

 

Social media...

#IGD2019 #rarebutnotalone #rarestars

Building upon the success of recent years, we will continue to use social media to share content and to raise awareness of #IGD2019 and Gaucher disease. Please use your own social media platforms to promote #IGD2019.

 

If you would like to print your own merchandise, please refer to our Style Guide and Conditions of Use.

Get involved…

You can raise awareness of IGD2019 and Gaucher disease very simply by:

  • marking it with ink! share and wear the official #IGD tattoo and use the postcard to accompany the tattoos
  • downloading and sharing the #IGD2019 poster
  • downloading and sharing the #IGD2019 factsheet 
  • using the #IGD2019 signature strip on your emails
  • share our press release
  • organising a lecture for students at a medical school or for doctors at a hospital
  • gathering in a public place and spreading information about Gaucher disease
  • organising a workshop for journalists and clinicians
  • inviting your own Rare Star to participate in our social media campaign
  • organising a sporting event, such as a run, walk or bike ride
  • sharing your photos and stories on social media using #IGD2019 #rarebutnotalone #rarestars or emailing them to us to share 

Downloadable Materials - click below for Web, Design or Print files