COLLEGATI AD UNO DEI NOSTRI 41 PAESI MEMBRI PER SOSTEGNO, CONSIGLIO E NOTIZIE A LIVELLO LOCALE

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Notizie Ed Eventi

  • December newsletter

    18 dicembre 2018

    Read our latest newsletter here

  • Mongolia to join the IGA

    10 dicembre 2018

    We are pleased to announce that the ХОВОР ӨВЧНИЙ ЭСРЭГ ХАМТДАА "Together in the Fight Against Rare Diseases" (Mongolia) have now joined the IGA, taking our membership up to 49 member associations from 49 …

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  • November newsletter

    30 novembre 2018

    Read the IGA's latest newsletter here

  • Minutes from the EGA's Biennial Members Meeting

    21 novembre 2018

    Please click here to read the minutes from the European Gaucher Alliance´s Biennial General Meeting which took place on Monday 16 & Tuesday 17 October 2018 at the Tallink Hotel Riga

  • October newsletter

    1 novembre 2018

    Read all about the IGA's biennial meeting that took place in Riga earlier this month here

  • EWGGD 2019 'Save the Date'

    24 ottobre 2018

    The 13th EWGGD meeting will take place from 4-6 July 2019 in Clermont-Ferrand, France.  For more details please visit the EWDDG website

  • The EGA becomes the IGA

    15 ottobre 2018

    We announced our new name "International Gaucher Alliance" (IGA) at the biennial members meeting in Riga on 15 October 2018.  Watch the video of our rebranding journey here.

     

  • #IGD2018 #rarestars videos

    2 ottobre 2018

    Following a succesful social media campaign for this years' International Gaucher Day we are happy to share all our #rarestars videos over on our YouTube channel.  Please feel free to share these on your own website and social media …

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  • September newsletter

    24 settembre 2018

    Read the latest newsletter from the EGA here

  • Turkey and Kazakhstan to join the EGA

    11 settembre 2018

    We are pleased to announce that the MPSTURK (Turkey) and Public Association “Children with disabilities with Gaucher Disease” (Kazakhstan) have now joined the EGA, taking our membership up to 48 member associations from 48 countries …

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