COLLEGATI AD UNO DEI NOSTRI 41 PAESI MEMBRI PER SOSTEGNO, CONSIGLIO E NOTIZIE A LIVELLO LOCALE

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chiudi
  • Finland
  • Norway
  • Sweden
  • Estonia
  • Russian Federation
  • Latvia
  • Denmark
  • Lithuania
  • United Kingdom
  • Netherlands
  • Ireland
  • Poland
  • Germany
  • Belgium
  • Czech Republic
  • Ukraine
  • Slovakia
  • Luxembourg
  • Moldova, Republic of
  • Austria
  • France
  • Switzerland
  • Romania
  • Slovenia
  • Croatia
  • Serbia
  • Bosnia & Herzegovina
  • Bulgaria
  • Italy
  • Macedonia, the Former Yugoslav Republic of
  • Spain
  • Greece
  • Israel

Eventi

  • Bone disease webinar

    31 marzo 2021

    Bone involvement is one of the most prevalent aspects of GD and a major cause of pain, disability, and reduced quality of life. All three types of Gaucher disease have bone disease in common and can have serious complications in those …

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  • Wellness for Gaucher disease patients

    19 febbraio 2021

     

    As many countries are still in lockdown, people including those living with Gaucher disease are spending a lot of time at home.  The IGA is supporting its members in these difficult times with a webinar: ‘Wellness for …

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  • Newborn screening webinar

    2 ottobre 2020

     

    Newborn screening is the process of testing newborn babies for serious, but treatable, conditions including Gaucher disease.  This webinar will present the basis, benefits, experiences and working with governments to get …

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  • Biennial Members meeting: Our members share best practice and highlight challenges – coming together as a community

    2 ottobre 2020

     

    Following the postponement of our face-to-face Biennial members meeting this year in Leiden, we are excited to share with you the details of our virtual meetings taking place in October which you can book on to now…

    The …

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  • Biennial Members meeting: How we are working to improve the lives of the global Gaucher community

    2 ottobre 2020

    Following the postponement of our face-to-face Biennial members meeting this year in Leiden, we are excited to share with you the details of our virtual meetings taking place in October which you can book on to now…

    The first will take …

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  • Digital Health Technology webinar

    10 settembre 2020

    As part of the IGA’s series of educational webinars we will be hosting one on the growing use of digital technology to capture patient data, empower patients to be more involved in their health journey, as well as recognise the anxiety and …

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  • Extraordinary General Meeting

    9 settembre 2020

    On 30th September 2020 at 5.30 pm UK time the IGA will hold a short special general meeting (via zoom) to present to our members a number of changes to our constitution, which if approved will allow us to apply to become a registered charity in …

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  • AAV Gene Therapy for neuronopathic Gaucher disease and Parkinson's disease with a GBA mutation

    5 agosto 2020

    Taking place on Monday 5th Ocober from 3-4:30pm (BST), this is the second in a series of educational webinars for our members on the latest developments in gene therapy will focus on AAV-based gene therapy and Prevail Therapeutic's approach …

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  • IGD2020: Home Therapy webinar

    5 agosto 2020

    In view of the challenges many Gaucher patients have faced during the coronavirus pandemic, the focus of this year's IGD campaign is home therapy.

    The second of our educational webinars on home therapy, this one will take place on 1 …

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  • Ex vivo Gene Therapy for GD1

    5 agosto 2020

    The first of a series of educational webinars on the latest developments in gene therapy for Gaucher treatment, focusing on AVROBIO's lentiviral gene therapy, an ex vivo gene therapy approach for Type 1 Gaucher disease, will take place on …

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