Notizie

Global Patient Registry for nGD

14 gennaio 2019

The International Gaucher Alliance (IGA) are today pleased to announce the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in order to increase disease knowledge and understanding, but also …

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December newsletter

18 dicembre 2018

Read our latest newsletter here

Mongolia to join the IGA

10 dicembre 2018

We are pleased to announce that the ХОВОР ӨВЧНИЙ ЭСРЭГ ХАМТДАА "Together in the Fight Against Rare Diseases" (Mongolia) have now joined the IGA, taking our membership up to 49 member associations from 49 …

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November newsletter

30 novembre 2018

Read the IGA's latest newsletter here

Minutes from the EGA's Biennial Members Meeting

21 novembre 2018

Please click here to read the minutes from the European Gaucher Alliance´s Biennial General Meeting which took place on Monday 16 & Tuesday 17 October 2018 at the Tallink Hotel Riga

October newsletter

1 novembre 2018

Read all about the IGA's biennial meeting that took place in Riga earlier this month here

EWGGD 2019 'Save the Date'

24 ottobre 2018

The 13th EWGGD meeting will take place from 4-6 July 2019 in Clermont-Ferrand, France.  For more details please visit the EWDDG website

The EGA becomes the IGA

15 ottobre 2018

We announced our new name "International Gaucher Alliance" (IGA) at the biennial members meeting in Riga on 15 October 2018.  Watch the video of our rebranding journey here.

#IGD2018 #rarestars videos

2 ottobre 2018

Following a succesful social media campaign for this years' International Gaucher Day we are happy to share all our #rarestars videos over on our YouTube channel.  Please feel free to share these on your own website and social media …

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September newsletter

24 settembre 2018

Read the latest newsletter from the EGA here