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Orphazme have just announced their interim report detailing their activities and achievements for the first half of 2019 and we’re thrilled about one of their milestones: they have completed enrolment in their Phase II Gaucher clinical trial …
Read all the latest news from the IGA here
As we continue to grow our global reach to provide a strong voice for Gaucher patients worldwide Patricia Lucki joins our team of regional managers to support the Central America region.
Patricia was born in Argentina and has lived in …
CEO, Tanya Collin-Histed writes; The IGA works closely alongside the pharmaceutical companies that have charitable access programmes to ensure no-one gets left behind.
Earlier this year several Gaucher patients applied for charitable treatment …
We love sharing Good News stories... the collaboration of Takeda and Direct Relief means that a child in Tanzania is now getting treatment for Gaucher disease through their charitable access programme.