News

International Gaucher Day 2017. A great success.

3 October 2017

We just wanted to thank everybody that made International Gaucher Day 2017 a huge success and to remind you to share your photos and stories with us.  I hope that you all enjoyed the day and celebrated in some fine style.  My personal …

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A further Inspiring #IGD2017 tale for you to enjoy.

27 September 2017

Lets hold these people up  as true role models in our society and communities.  

https://www.facebook.com/InternationalGaucherDay/?hc_ref=ARR9qD8_aXkzvRUM81hfjlyPxZjb8Sgt-lOP6B44sOF-h8fiRdWw2pncU1B6cIWhd84&fref=nf

3rd IGD 2017 story for you to enjoy!

22 September 2017

Per from Norway, a truely inspirational Gentleman.

https://www.facebook.com/InternationalGaucherDay/photos/a.838914669575148.1073741830.791921010941181/1084747714991841/?type=3&theater

…

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2nd Inspiring story for IGD 2017 published

19 September 2017

Please follow the link to the IGD 2017 Facebook page to read about Nenad.  Share the story and spread the word. #IGD2017 #rarebutnotalone. 

IGD2017

12 September 2017

Check out the International Gaucher Day for the latest updates.  Let us ramp up our efforts to raise awareness!

Go with gaucher

20 July 2017

For all the latest news and updates on the Go With Gaucher symposium 2017 follow the link below.  

Click here

Clinical Trial for Gaucher Disease Type 3

22 February 2017

Clinical Trial for Gaucher Disease Type 3

By National Gaucher Foundation

Sanofi Genzyme’s Phase 2 Clinical Trial to Evaluate Oral Substrate Reduction Therapy for Gaucher Disease Type 3

Sanofi Genzyme is investigating an orally …

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Seasons Greetings/Office opening hours

16 December 2016

The EGA would like to take this opportunity send Seasonal Greetings and best wishes for the New Year and to thank everyone for their support in 2016.

The office will close at 4.30pm (UK time) on Friday 16 December and re-open at 9am on Tuesday 3 …

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Botswana to join the EGA

29 November 2016

We are pleased to announce that the Botswana Organisation for Rare Diseases (BORDIS) has now joined the EGA, taking our membership up to 45 countries worldwide.

Go With Gaucher, taking forward the next generation: how to involve young people to create a new generation of patient advocates

3 November 2016

A paper written by Anne-Grethe Lauridsen, Jo Higgs and Vesna Aleksovska on behalf of the EGA has been published in the Orphanet Journal of Rare Diseases’ supplement of the 8th European Conference on Rare Diseases & Orphan Products (ECRD …

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