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COVID-19: IGA and European GD Network Gaucher Research Survey
2020-05-29 13:05:24

Calling all Gaucher patients

We would like to ask you to complete the following patient survey to help us understand the impact of the disease on Gaucher patients, their families and supporters and to provide invaluable research data with the intention of benefitting Gaucher patients:

The European Gaucher Disease Network is a collaborative group under the umbrella of the European Haematology Association with the aim of increasing awareness and the involvement of haematologists globally about Gaucher disease. The IGA and members of the EWGGD are involved in this network to ensure collaborative working across all initiatives to ensure benefits to the patient.