News

Minutes from the EGA's Biennial Members Meeting

21 November 2018

Please click here to read the minutes from the European Gaucher Alliance´s Biennial General Meeting which took place on Monday 16 & Tuesday 17 October 2018 at the Tallink Hotel Riga

October newsletter

1 November 2018

Read all about the IGA's biennial meeting that took place in Riga earlier this month here

EWGGD 2019 'Save the Date'

24 October 2018

The 13th EWGGD meeting will take place from 4-6 July 2019 in Clermont-Ferrand, France.  For more details please visit the EWDDG website

The EGA becomes the IGA

15 October 2018

We announced our new name "International Gaucher Alliance" (IGA) at the biennial members meeting in Riga on 15 October 2018.  Watch the video of our rebranding journey here.

#IGD2018 #rarestars videos

2 October 2018

Following a succesful social media campaign for this years' International Gaucher Day we are happy to share all our #rarestars videos over on our YouTube channel.  Please feel free to share these on your own website and social media …

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September newsletter

24 September 2018

Read the latest newsletter from the EGA here

Turkey and Kazakhstan to join the EGA

11 September 2018

We are pleased to announce that the MPSTURK (Turkey) and Public Association “Children with disabilities with Gaucher Disease” (Kazakhstan) have now joined the EGA, taking our membership up to 48 member associations from 48 countries …

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August Newsletter

13 August 2018

Read the latest newsletter from the EGA here

Biennial Members Meeting – 15 & 16 October 2018

4 July 2018

The EGA’s biennial members meeting will now take place in Riga (Latvia) on Monday 15 and Tuesday 16 October 2018 at the Tallink Hotel 

We will be inviting ONE representative from each of our member associations to attend our meeting.

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Results of EGA 2018/2020 Election

28 June 2018

Following the recent board member elections for 2018/2020 we are pleased to announce that the new board, who will take effect from the close of the biennial members meeting in October 2018, will be:
 

Vesna Aleksovska (Macedonia)
Diana …

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