News

AVROBIO explore gene therapy as a potential treatment for Gaucher disease

10 April 2019

The IGA are excited to be working in partnership with Avrobio to explore gene therapy as a potential treatment for Gaucher patients.  

AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing …

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March newsletter

26 March 2019

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Election of new Chair and Vice-Chair

6 March 2019

Following Pascal Niemeyer’s resignation from the IGA board of directors, we are pleased to announce that Vesna Aleksovska has been elected Chair and will be supported by Biljana Jovanović, who has been elected Vice-Chair.  Both bring a …

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February newsletter

28 February 2019

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Pascal Niemeyer resigns as IGA Chairman and Director

13 February 2019

Pascal Niemeyer, Chairman of the IGA since 2016, has decided for personal reasons to resign both, as chairman and as director of the IGA.

The IGA regrets but will respect his decision.

We are very thankful for Pascal´s engagement for the …

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Australia & New Zealand to join the IGA

12 February 2019

We are pleased to announce that the Gaucher Association of Australia & New Zealand have now joined the IGA, taking our membership up to 50 member associations from 51 countries worldwide.

Looking for Volunteers

22 January 2019

Patient/Parent focus group for Global Patient Registry for nGD – are you interested in taking part?

Last week the IGA announced the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in …

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January 2019 newsletter

22 January 2019

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Global Patient Registry for nGD

14 January 2019

The International Gaucher Alliance (IGA) are today pleased to announce the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in order to increase disease knowledge and understanding, but also …

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December newsletter

18 December 2018

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