News

Mongolia to join the IGA

10 December 2018

We are pleased to announce that the ХОВОР ӨВЧНИЙ ЭСРЭГ ХАМТДАА "Together in the Fight Against Rare Diseases" (Mongolia) have now joined the IGA, taking our membership up to 49 member associations from 49 …

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November newsletter

30 November 2018

Read the IGA's latest newsletter here

Minutes from the EGA's Biennial Members Meeting

21 November 2018

Please click here to read the minutes from the European Gaucher Alliance´s Biennial General Meeting which took place on Monday 16 & Tuesday 17 October 2018 at the Tallink Hotel Riga

October newsletter

1 November 2018

Read all about the IGA's biennial meeting that took place in Riga earlier this month here

EWGGD 2019 'Save the Date'

24 October 2018

The 13th EWGGD meeting will take place from 4-6 July 2019 in Clermont-Ferrand, France.  For more details please visit the EWDDG website

The EGA becomes the IGA

15 October 2018

We announced our new name "International Gaucher Alliance" (IGA) at the biennial members meeting in Riga on 15 October 2018.  Watch the video of our rebranding journey here.

#IGD2018 #rarestars videos

2 October 2018

Following a succesful social media campaign for this years' International Gaucher Day we are happy to share all our #rarestars videos over on our YouTube channel.  Please feel free to share these on your own website and social media …

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September newsletter

24 September 2018

Read the latest newsletter from the EGA here

Turkey and Kazakhstan to join the EGA

11 September 2018

We are pleased to announce that the MPSTURK (Turkey) and Public Association “Children with disabilities with Gaucher Disease” (Kazakhstan) have now joined the EGA, taking our membership up to 48 member associations from 48 countries …

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August Newsletter

13 August 2018

Read the latest newsletter from the EGA here