Rare Disease Day 2018 28 February

15 January 2018

The Theme for Rare Disease Day 2018 is Research, continuing on from 2017.

Rare disese research contributes to the development of diagnostic tools, treatments and cures, as well as improved health and social care for patients and their families.

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Seasons Greetings and Office Opening Hours

19 December 2017

During the festive period, the EGA office will be closed from 14:30 on Wednesday 20 December until 9:00 on Tuesday 2 January 2018.  If you have an urgent enquiry please email Tanya on tanya@gaucheralliance.org.

The EGA would like to wish all …

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International Gaucher Day 2017. A great success.

3 October 2017

We just wanted to thank everybody that made International Gaucher Day 2017 a huge success and to remind you to share your photos and stories with us.  I hope that you all enjoyed the day and celebrated in some fine style.  My personal …

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A further Inspiring #IGD2017 tale for you to enjoy.

27 September 2017

Lets hold these people up  as true role models in our society and communities.  

https://www.facebook.com/InternationalGaucherDay/?hc_ref=ARR9qD8_aXkzvRUM81hfjlyPxZjb8Sgt-lOP6B44sOF-h8fiRdWw2pncU1B6cIWhd84&fref=nf

3rd IGD 2017 story for you to enjoy!

22 September 2017

Per from Norway, a truely inspirational Gentleman.

https://www.facebook.com/InternationalGaucherDay/photos/a.838914669575148.1073741830.791921010941181/1084747714991841/?type=3&theater

…

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2nd Inspiring story for IGD 2017 published

19 September 2017

Please follow the link to the IGD 2017 Facebook page to read about Nenad.  Share the story and spread the word. #IGD2017 #rarebutnotalone. 

IGD2017

12 September 2017

Check out the International Gaucher Day for the latest updates.  Let us ramp up our efforts to raise awareness!

Go with gaucher

20 July 2017

For all the latest news and updates on the Go With Gaucher symposium 2017 follow the link below.  

Click here

Clinical Trial for Gaucher Disease Type 3

22 February 2017

Clinical Trial for Gaucher Disease Type 3

By National Gaucher Foundation

Sanofi Genzyme’s Phase 2 Clinical Trial to Evaluate Oral Substrate Reduction Therapy for Gaucher Disease Type 3

Sanofi Genzyme is investigating an orally …

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Seasons Greetings/Office opening hours

16 December 2016

The EGA would like to take this opportunity send Seasonal Greetings and best wishes for the New Year and to thank everyone for their support in 2016.

The office will close at 4.30pm (UK time) on Friday 16 December and re-open at 9am on Tuesday 3 …

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