Data Protection Law is changing...... Due to changes in data protection legislation; soon the European Gaucher Alliance (EGA) won’t be able to contact you about any of our services or activities unless you explicitly give your consent. We are updating our processes and practice to ensure that we comply with the new General Data Protection Regulation (GDPR), which comes into effect in May 2018 and replaces the Data Protection Act (1998).
In other words, regardless of where you are in the world; as a member of the EGA if you would like to continue to use our services, receive our updates and information about our services, research and clinical trials, our events, details of fundraising activities or other items relevant to our work, we will need your explicit permission to keep in touch with you.
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