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News

  • Joint proposal to facilitate clinical investigation of new medicines for Gaucher disease in children

    17 May 2014

    14/05/2014

    European Medicines Agency and US Food and Drug Administration release joint proposal to facilitate clinical investigation of new medicines for Gaucher disease in children

    The European Medicines Agency (EMA) and the United States Food …

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  • FDA Grants Priority Review for Cerdelga (Eliglustat)

    16 December 2013

    FDA Grants Priority Review for Genzyme’s Cerdelga™ (eliglustat), an Investigational Oral Therapy for Gaucher Disease

    CAMBRIDGE, Mass.--(BUSINESS WIRE)--Genzyme, a Sanofi company announced today that the Food and Drug Administration …

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  • Ega becomes full member of EURORDIS

    28 November 2013

    The EGA is pleased to announce that EURORDIS Board of Directors has confirmed that our organization is meeting all requirements to become a full member and has therefore accepted our
  • Luxembourg to join the EGA

    27 November 2013

    We are pleased to announce that ALAN a.s.b.l. (Association Luxembourgeoise d’aide pour les personnes atteintes de maladies neuromusculaires et de maladies rares)  has joined the EGA as a full member.

  • Moldova to join the EGA as 40th member

    19 September 2013

     We are pleased to announce that Asociatia Pentru Boli Lizozomale Si Gaucher Din Republica Moldova, the Gaucher and Lysosomal Diseases Association of Moldova has joined the EGA as a full member.

     

     

  • 6th nGD Family Conference, 8-10.11.2013 in Reading, UK.

    2 July 2013

    The sixth nGD Family Conference will take place between 8-10 November 2013 in Reading, UK.

     

    There will be a whole host of presentations including:

    • Drug trials & strategies for treatment
    • ERT – how does it work?
    • Pregnancy & …

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  • Croatia to join the EGA

    18 June 2013

    We are pleased to announce that Hrvatski savez za rijetke bolesti, the Croatian Alliance for Rare Diseases, has joined the EGA as a full member.

  • Paraguay to join the EGA

    11 June 2013

    We are pleased to announce that Asociación de Pacientes de Gaucher del Paraguay has joined the EGA as an associate member.

  • Report from regional patient meeting in Sarajevo, Bosnia & Herzegovina

    20 April 2013

    Gaucher patients, their families and doctors from Slovenia, Croatia, Bosnia & Herzegovina, Serbia, Montenegro and Macedonia met in Sarajevo, from 5th-7th April 2013.

    The second regional meeting of Gaucher patients and The first regional meeting …

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  • Canada to join the EGA

    26 March 2013

    • We are pleased to announce that The National Gaucher Foundation of Canada has joined the EGA as an associate member.