Site Logo
Humanitarian Aid (March 2012)
2012-03-26 22:03:47


Humanitarian Aid has always been a priority for the EGA...

...and will continue to be a priority in the future, we have pledged to help any Gaucher patient who ask us for help where ever they live. However the “Gaucher-world” has changed over the last couple of years with the introduction of new therapies and new companies coming into the market and it is necessary to look at how best to approach the provision of humanitarian aid to ensure sustainability and security for patients and their families.

For this reason a very important meeting took place in Amsterdam at the Amsterdam Medical Centre on the 5th of October 2011, convened by the EWGGD and EGA. Read more...