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2019-06-04 09:06:10


Following the announcement of our 2019 campaign for IGD "Rare Stars: Bringing hope, improving lives" we would like to ask you to nominate your own Rare Star - this should be someone who has made a difference in your life as a Gaucher patient. 

Please complete the Nomination Form with the details of your Rare Star and ask them to sign the Consent Form. We can only accept nominations with a signed consent form.

Return your form, together with a good quality photo of your rare star to before 31 July 2019.  The photo should be a jpg file and no bigger than 5mb.

Please share this campaign with your members and encourage them to nominate their own rare star too.

All photos submitted will be used to create a montage that will be released on 1 October and the individual rare stars will be framed and shared on social media throughout the month of October.

 #rarebutnotalone #rarestars #togetherwearestronger