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News & Events

  • Ega becomes full member of EURORDIS

    28 November 2013

    The EGA is pleased to announce that EURORDIS Board of Directors has confirmed that our organization is meeting all requirements to become a full member and has therefore accepted our
  • Luxembourg to join the EGA

    27 November 2013

    We are pleased to announce that ALAN a.s.b.l. (Association Luxembourgeoise d’aide pour les personnes atteintes de maladies neuromusculaires et de maladies rares)  has joined the EGA as a full member.

  • 10th anniversary of Slovenian Gaucher Association

    28 October 2013

    The 10th anniversary of Slovenian Gaucher Association will be celebrated on 10th November 2013 in Ljubljana.

    More information:


  • Moldova to join the EGA as 40th member

    19 September 2013

     We are pleased to announce that Asociatia Pentru Boli Lizozomale Si Gaucher Din Republica Moldova, the Gaucher and Lysosomal Diseases Association of Moldova has joined the EGA as a full member.



  • 6th nGD Family Conference, 8-10.11.2013 in Reading, UK.

    2 July 2013

    The sixth nGD Family Conference will take place between 8-10 November 2013 in Reading, UK.


    There will be a whole host of presentations including:

    • Drug trials & strategies for treatment
    • ERT – how does it work?
    • Pregnancy & …

    read more »

  • Croatia to join the EGA

    18 June 2013

    We are pleased to announce that Hrvatski savez za rijetke bolesti, the Croatian Alliance for Rare Diseases, has joined the EGA as a full member.

  • Paraguay to join the EGA

    11 June 2013

    We are pleased to announce that Asociación de Pacientes de Gaucher del Paraguay has joined the EGA as an associate member.

  • Report from regional patient meeting in Sarajevo, Bosnia & Herzegovina

    20 April 2013

    Gaucher patients, their families and doctors from Slovenia, Croatia, Bosnia & Herzegovina, Serbia, Montenegro and Macedonia met in Sarajevo, from 5th-7th April 2013.

    The second regional meeting of Gaucher patients and The first regional meeting …

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  • Austrian Gaucher Meeting 21/23.09 (Innsbruck)

    18 April 2013

    The Austrian Gaucher Association Meeting will take place on 20/21 September 2013 in Innsbruck, Austria. 

    Please contact Roman Pichler for more details:

  • 5th Nordic-Baltic Gaucher Meeting 19-21.4 in Talinn (Estonia)

    27 March 2013

    More than 85 patients and relative have signed up for the 5th Nordic-Baltic Gaucher Meeting, making this meeting the largest ever.

    Patients from Norway, Sweden, Denmark, Finland, Lithuania, Latvia and Estonia are meeting for a two day seminar with …

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