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News & Events

  • EWGGD 2019 'Save the Date'

    24 October 2018

    The 13th EWGGD meeting will take place from 4-6 July 2019 in Clermont-Ferrand, France.  For more details please visit the EWDDG website

  • The EGA becomes the IGA

    15 October 2018

    We announced our new name "International Gaucher Alliance" (IGA) at the biennial members meeting in Riga on 15 October 2018.  Watch the video of our rebranding journey here.


  • #IGD2018 #rarestars videos

    2 October 2018

    Following a succesful social media campaign for this years' International Gaucher Day we are happy to share all our #rarestars videos over on our YouTube channel.  Please feel free to share these on your own website and social media …

    read more »

  • September newsletter

    24 September 2018

    Read the latest newsletter from the EGA here

  • Turkey and Kazakhstan to join the EGA

    11 September 2018

    We are pleased to announce that the MPSTURK (Turkey) and Public Association “Children with disabilities with Gaucher Disease” (Kazakhstan) have now joined the EGA, taking our membership up to 48 member associations from 48 countries …

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  • August Newsletter

    13 August 2018

    Read the latest newsletter from the EGA here

  • Biennial Members Meeting – 15 & 16 October 2018

    4 July 2018

    The EGA’s biennial members meeting will now take place in Riga (Latvia) on Monday 15 and Tuesday 16 October 2018 at the Tallink Hotel 

    We will be inviting ONE representative from each of our member associations to attend our meeting.

    read more »

  • Results of EGA 2018/2020 Election

    28 June 2018

    Following the recent board member elections for 2018/2020 we are pleased to announce that the new board, who will take effect from the close of the biennial members meeting in October 2018, will be:

    Vesna Aleksovska (Macedonia)
    Diana …

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  • Morocco to join the EGA

    21 June 2018

    We are pleased to announce that the Moroccan Vaincre les Maladies Lysosomales (Espoir VML Maroc) has now joined the EGA, taking our membership up to 47 countries worldwide.

  • GDPR Changes. Tell us how you want to be contacted.

    30 April 2018


    The Data Protection Law is Changing...

    Due to changes in data protection legislation, soon the European Gaucher Alliance won’t be able to contact you about any of our services or activities unless you explicitly give …

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