LINK TO ONE OF OUR 57 MEMBER ASSOCIATIONS FOR LOCAL SUPPORT, ADVICE AND NEWS

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News & Events

  • March 2020 newsletter

    18 March 2020

    In our latest newsletter you can read the latest update on our global nGD patient registry, a report from the WORLDsymposium and how collaborative working is enabling patients to receive treatment through charitable access programmes.  …

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  • A message regarding the COVID-19 pandemic

    18 March 2020

    On behalf of the International Gaucher Alliance, we would like to express our support for those individuals and families already directly affected by COVID-19 around the world.

    We are conscious of the stress the pandemic is causing on people …

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  • IGA response to COVID-19: attending meetings

    16 March 2020

    In light of the current global circumstances with the Coronavirus and the ongoing daily change in cases and governments making decisions regarding their attempts to contain and reduce risks to their citizens, the IGA has taken the decision that our …

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  • Good news sharing - charitable access

    13 March 2020

    Sharing some good news with our Gaucher community...

    Takeda’s Medical Expert Committee (MEC) have recently approved 17 Gaucher patients from Pakistan, Sudan, Tanzania and Tunisia on to their annual LSD Charitable Access Programme (CAP).

    read more »

  • IGA neuronopathic Gaucher Disease (nGD) Global Registry: patient community phase I final report

    12 March 2020

    Following on from the recent announcement about our letter of intent to partner with Kantar to manage the day to day running of the IGA’s neuronopathic Gaucher disease patient registry and our subsequent Facebook Live session with Tanya …

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  • Postponement of IGA Biennial Meeting in response to concerns over COVID-19

    10 March 2020

    Given the current concerns re COVID-19 and the travel bans already in place in some areas the IGA board has taken the difficult decision, in line with the EWGGD, to postpone the 2020 biennial members meeting to 10-11 October 2020. The venue will …

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  • Would you like to join the IGA's board of directors?

    25 February 2020

    This year the IGA will be holding elections to form its new board ahead of the biennial members meeting and there are 11 vacancies to fill.  More details can be found by reading the newsletter which has just been sent to all our members

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  • Kantar partnership announcement: Facebook Live session

    5 February 2020

    On Monday we announced our partnership with Kantar to manage the day to day running of the IGA’s global neuronopathic Gaucher disease patient registry.

    Our CEO, Tanya Collin-Histed said “We are delighted that our vision of a global …

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  • 2020 Biennial Members Meeting

    4 February 2020

    The IGA’s biennial members meeting and the 14th EWGGD congress will take place in Leiden, Netherlands from 23rd to 27th May 2020 and the IGA will be inviting one representative from each of its member associations to attend.  

    (The …

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  • 14th European Working Group on Gaucher Disease Congress

    4 February 2020

    The EWGGD has launched the website for its 14th European Working Group on Gaucher Disease Congress (EWGGD 2020) to be held from 24-27 May, 2019 in Leiden, The Netherlands.

    It was 25 years ago when the EWGGD organised its first congress in …

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