- 23-01-2020IGA's Membership Grows to 56 Member Associations From 54 Countries
- 15-01-2020AVROBIO Announces Clinical and Regulatory Progress For Gaucher Disease Program
- 10-01-2020PR001 Administered to International Type 2 Gaucher Disease Patient Via Compassionate Use Pathway
- 08-01-2020Prevail Therapeutics Is Recruiting Patients For PROPEL, a Clinical Trial Testing An Investigational Gene Therapy Called PR001 to Treat Parkinson’s Disease In People with GBA Mutations
De EGA is een pan-Europese umbrella groep die de belangen vertegenwoordigt van Gaucherpatienten en Gaucherpatientgroepen in Europa en elders in de wereld. Lokale patientgroepen kunnen in afzondering niet effectief werken. De EGA bied een goede vertegenwoo
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EGA Downloads
The EGA is happy to publish the following documents for those wishing to learn more about the work of the EGA.
Please feel free to download them from this page
- EGA Brochure
- EGA Poster
- EGA Film: 20th Anniversary
- EGA Work Programme 2015
- EGA Code of Practice on Relationships with the Pharmaceutical Industry
- Proceedings of the 11th EWGGD in Haifa
- EGA Scientific Paper 2014: a survey of member patient organisations’ activities, healthcare environments and concerns