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De EGA is een pan-Europese umbrella groep die de belangen vertegenwoordigt van Gaucherpatienten en Gaucherpatientgroepen in Europa en elders in de wereld. Lokale patientgroepen kunnen in afzondering niet effectief werken. De EGA bied een goede vertegenwooNederlands ▼ login ▼
We may collect the following information through this website:
Any information you give will be available to the IGA for reasonable use. We may use your information to provide you with the services, information or products that you request or for administrative purposes. - However you can be assured that we will never pass on / sell your data to a third party.
We are committed to ensuring that your information is secure. In order to prevent unauthorised access or disclosure, we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect online.
Like most websites, our server gathers limited information about you during a session, including the IP address and domain name from which you are accessing the server and your browser configuration. This information is only used to help us improve the content, design and performance of the site, and is not linked to the identity of any individual user.
Cookies are small pieces of information that are transferred to and stored by your browser on your computer.
In no circumstances do we collect any data that is not directly related to the use of the website (for example, we do not record other sites that you have visited).
The log files or any information they contain about your use of the site will not be made available to any third parties other than as anonymous usage statistics.
Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting such sites and such sites are not governed by the privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question.
As mentioned, we will not share your personal information to third parties unless we have your permission or are required by law to do so.
If you wish to request a copy of the information we hold about you or wish to update or delete any information, please write to: Jo Higgs at: The International Gaucher Alliance, 8 Silver Street, Dursley, Gloucestershire, GL11 4ND, or email: firstname.lastname@example.org
A cookie is a small file which asks permission to be placed on your computer's hard drive. Once you agree, the file is added and the cookie helps analyse web traffic or lets you know when you visit a popular site.
The IGA uses permanent cookies to enable basic web traffic analysis using Google Analytics.
These will remain stored on your computer until deleted, or until they reach a specified expiry date.
You can choose to accept or decline cookies upon first use of the website. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. This may prevent you from taking full advantage of the website.
For further information concerning General Data Protection Regulations and your rights and preferences please click to follow the link:-