De EGA is een pan-Europese umbrella groep die de belangen vertegenwoordigt van Gaucherpatienten en Gaucherpatientgroepen in Europa en elders in de wereld. Lokale patientgroepen kunnen in afzondering niet effectief werken. De EGA bied een goede vertegenwoo
Nederlands ▼ login ▼There are 2 members for the country Romania:
• Asociaţia Gaucher România/Romanian Gaucher Association
• Fundatia Romana Pentru Bolile Lizozomale
Str Primăverii No 8, Cluj-Napoca jud.CLUJ Romani
Tel: 00 40 7 41 07 84 83
Email: infogaucher.ro@gmail.com
Information is the path to a better understanding of the disease and its treatment.
Gaucher Romania Association proposes:
Information and education (website, Facebook page, Facebook discussion group)
Representing the needs of patients with Gaucher disease nationally and internationally
Sharing experience with other patients to find solutions together
Possibility to attend useful, informative, educational or supportive meetings
Fundatia Romana Pentru Bolile Lizozomale
Targu-Jiu, Strada Victoriei, bloc 39, scara 2, apartament 2
Phone: + 40 0744618289 or +40 0744336031
Fax: +40 216551373
Email: gaucher.romania@yahoo.com